This blog post is part of a series that I began for telling our story. You can read the first post here.

From this point forward, I’m going to be sharing the text of posts as they were written at the time. Some will come from this blog; others, from our CaringBridge site. I may from time to time write my own reflections after re-reading, but mostly I will just be sharing words as they were written. So much of this journey for me is revisiting what happened, and realizing just how difficult the journey was for us. And now, seeing how far we’ve come since that time.

After the huge stressors of Holy Week and everything that happened, suddenly, our daughter was off the ventilator and moved into a step-down unit (intermediate care). We lost our ability to sleep in the Ronald McDonald House rooms, but we gained the ability to sleep in her room. I think there was a fold-out chair and an upholstered window seat, so we could both sleep there. It’s still crazy to me how fast things moved with her improvements overall during that time. Not as fast as everything went wrong, but certainly at a speed that makes me dizzy thinking about it today.

From CaringBridge on April 30, written by my sister:

They are giving Samantha lasiks right now so that they can extubate her. She’s been really sleepy since her MRI so they want her to wake up a little more. Please pray that she wakes up and becomes more active and that taking the tube out goes smoothly. Also prayers that she is able to breath strong and sustained on her own. Thank you for the on-going prayers for this precious life. We know that God is the great physician and is taking care of her. Please keep beseeching Him to heal her.

Samantha is off the vent!  Which also means that mom and dad get to hold her!  Praise the Lord!

From CaringBridge on May 1, written by my sister:

Samantha is making some huge strides and is now totally off of oxygen.  They also even took her leads off this morning long enough to give her a bath.  They were put right back on, but still a good sign that they could come off for a bit.  They are even beginning to talk about moving her out of ICU and onto the regular floor.  We aren’t sure when this will happen (today,tomorrow?) but it will be exciting to have more/easier access to her.  She is still being tube fed, but they are going to start trying to bottle feed today.  She took a pacifier yesterday for a brief amount of time, which shows that her suck reflex is still there which is wonderful news.  They also said that now she can be held more freely.  

Such wonderful news is amazing – in spite of where she was a week ago, in spite of what the MRI’s show she is showing that, “Our God is greater, Our God is stronger, God, You are higher than any other, Our God is Healer, awesome in power, Our God!” (lyrics by Chris Tomlin)

Thank you for the continued prayers, we know there is still a long road ahead for little Samantha, but we rejoice in the miracles that she is showing each day.  Praise the Lord!

Sammy was moved a step down out of the PICU to intermediate care. Her room is #922. We are so thankful that she is doing well enough to make that transition. There is still a long road ahead for this little girl but each step she takes is one step closer to coming home. Praise the Lord for her strength and perseverence! Thank you for the on-going prayers!

Next post coming tomorrow.

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